My hair after WBR

I’ve had so many people ask me about my hair after doing whole brain radiation.  Hair is so important to most people, it defines you.  I have always had a head full of blonde curly hair.  Those days are gone!  I started losing my hair the second week of WBR.  Instead of waiting for it to fall out I shaved my head.  About three months after WBR it started growing back.  I was so excited!!  About six months later I realized it wasn’t going to come back completely.  I had what I called a “nohawk”.  My hair grew in on the sides and on the back of my head but not on the top.  My oncology radiologist said the radiation skims the top of the head and it may not grow back there.  A year later and no hair is growing on top of my head.  This is what it looks like…….

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I don’t think it’s ever going to grow back on top.  I just keep shaving my head.  I honestly don’t mind being bald.  That’s the least of my worries!  95% of the time I walk around bald and happy to be alive!  I have beautiful wigs and  I wear them if I go somewhere special with my Javiee,   My favorite….

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Here’s a picture of my cousin Teressa and I.  If you see me out and about it’s usually like this…..bald.  I’ve embraced my baldness!

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That’s my hair story.  Thank you guys for all the love you send my way!  I love you all!!! Now get out and make some memories!

New Brain MRI Results

I don’t like to do scans in December. I love the happiness that fills the air this time of year.  Bad scans could dampen that.  I’m so excited to tell you that 15 rounds of WBR and a CyberKnife session gave me a good brain MRI!!  Can we all do a happy dance!?!?!

This doesn’t mean I’m dancing with NED again.  I was on Ibrance and Falsodex for the mets to my lung, hip and spine.  It did nothing to keep those areas stable.  I was on it for four months and my tumor marker went up monthly.  My last scan showed progression in all those areas.  My oncologist changed my medication to Afinitor and Exemestane two months ago.  I have a new PET scan in January to see if it’s working.  I’m praying it is. The side effects are easier to deal with than the ones I had on Ibrance.  I’m dealing with mouth sores and little bumps that randomly appear in different places.  My pain medicine is keeping my spine and hip pain under control and I’m no longer completely exhausted. I’m actually feeling pretty good right now!  I feel so blessed to be here for another holiday season.  I think my New Years resolution will be to make everyday a holiday!

Merry Christmas and Happy Holidays!  Life is busy, slow down and spend quality time with your loved ones.  Keep your family traditions alive and make memories (they last forever!).

Thank you for all the prayers and love you’ve showered me with over the past 4  (almost!) years.  It means so much to me! 💕💕💕

Now I have to share family news!  Remember how I wanted to live to be a glamma?  Well, now I will be glamma again!  Kori and Emily are expecting in May.  Jax will soon have a little brother or sister.  I’m so excited!  I love being a glamma!  He will be 2 when his new brother or sister arrives.  Look at how big he is!image

Whole Brain Radiation

I have survived 15 rounds of whole brain radiation.  Initially the hardest part was driving to Asheville and back everyday for a treatment that lasts less than 10 minutes. I videoed a session for those of you that may one day have to go through this.

Whole Brain Radiation   Here’s the link

It was a painless procedure.  My mask was latched to the table, everyone left the room and the radiation took a few minutes.  There was a smell that came with the radiation. It reminded me of Clorox.  The first 13 rounds were fairly easy on me.  I was dizzy afterwards and needed a nap.  I was surprised because I was expecting worse.  It hit me at round 14.  My forehead and my ears burnt so bad.  After round 15 I couldn’t hear and my ears smelt horrible.  I was told to take Mussinex to relieve pressure behind my ears.  I did that for a few days and didn’t notice a difference.  I ended up putting peroxide in my ears for a few days and my hearing is back!  I must tell you my oncologist advised against using peroxide.  It worked for me.  My eyesight also got bad with the last rounds of radiation.   I couldn’t read anything!  I’m using readers now and I feel them getting stronger everyday.  It’s been two weeks since my last round of radiation and the fatigue is extreme.  I’m so tired.  I just keep reminding myself that it’s over!  I have had a hard month!!  The day after my last radiation appointment I had my ovaries removed.   I’ll do a post on that soon.  I’m scheduled for the gamma knife and a new MRI in August.  Until then I’m going to get out and spend some time with my guys. I’ll end with some pictures.

 

This is my radiation mask.

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This is one of the Mets to my scalp.  Radiation healed all of them.  Let’s hope it’s working as well on the inside!

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This is a harsh one, but I share my truth with you guys.  My forehead after 15 rounds of WBR.

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Now for one that shows me on the mend!  It’s a wig!