Thank You Healthline!

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Today I was notified that my blog was chosen as one of Healthline’s Best Metastatic Breast Cancer Blogs of 2017.  Thank you to Healthline for recognizing my blog and The Metastatic Breast Cancer Community.

Find other metastatic breast cancer blogs here:  http://www.healthline.com/health/breast-cancer/metastatic-breast-cancer-blogs

 

What you should know before an Oophorectomy

One day after completing 15 rounds of whole brain radiation I went in for my Oophorectomy.  It was an out patient surgery.  My surgeon told me the recovery would be easy.  I shouldn’t be in pain and I should feel ok the next day.  Just take it easy and no heavy lifting.

Here’s what he didn’t tell me.  Don’t lay down after surgery.

I went home and went to bed.  I woke up the next morning in horrible pain.  Not abdominal pain, it was shoulder pain.  The gas that had been used to expand my abdomen during surgery had set up in my shoulder.  I should have slept sitting up in a recliner and I would have felt fine the day after surgery.  I wasn’t told that and I took pain meds and cried with shoulder pain for about five days.  It was bad!  If this surgery is in your future remember that and you should have a fast recovery.  I have four tiny scars from the incisions and they healed within two weeks.

Now for what was hiding in each of my ovaries:

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That’s a picture of a tumor that was in my ovary.  There was one in each ovary.  This is the largest one (2.0 cm).  How did a tumor this size not show on my scans?   The good news here is that we had it tested and it’s still er/pr+.  That gives me hope that the new medication I’m on can work on my bones and lung.

I go in for new scans next month to see if Faslodex and Ibrance are working.  I’m a little concerned because my tumor marker keeps getting higher every month.  Then in October I will have a new MRI to see what all the brain radiation has accomplished.  Until then I’m staying positive and living every good day to the fullest.  I’m also sleeping a lot.  I don’t know if it’s still exhaustion from radiation or my new treatment plan but there are days when I just don’t want to get out of bed.

I want to send a big thank you to everyone that has messaged, called and came by to share their love.  I even received  care packages from Australia (I ♥️You Emma!) and from Arizona (I ❤️ You Sally!)  You all make my world brighter!

Get out and make some memories!  💕💕

 

Back to Cancerland

The past two years have been fantastic.  Zoladex and Femara have served me well, until now.  I ended up in the emergency room on our beach trip with a massive headache.  I was treated for a migraine.  My headache never went away.  I had blood work done at the cancer center when we returned home.  My tumor marker was on the rise.  Scans showed a tumor in my ovary, two on my hip, on my ribs and on my spine. A brain MRI showed it had also metastasized to my brain.

There are no words that can begin to express how devasting this news is to us!  What a change in only three months!  We have cried, screamed and cried some more.  There is nothing left to do but fight this.  My big girl panties are back on. (Thanks to words of wisdom from a dear friend, Anya)

So, what’s next?  Tomorrow I will see a radiation oncologist.  I will find out exactly what the brain scans show and get ready for radiation.  I will be starting a new chemo (Ibrance and Faslodex) next week.  Three weeks on and one week off.  I will be getting xgeva monthly for my bones.  I will also be having surgery to remove my ovaries.  Wow!  This is not what I had planned for this summer!  I will keep you updated.  I’m grateful to have all your support!  You all make my life brighter!💕💕💕

I have so much to share about our Little Pink Houses Of Hope trip.  Life has been crazy!  I will share pictures from our trip soon!

 

Happy Birthday Jaxon!

The joys of being a glamma!  My grandson Jaxon turned one this month!  I felt so blessed to be there when he was born.  I cried like a baby the first time I held him.  I can’t even begin to tell you how happy I was to be at his first birthday party!  He is such a happy baby and he has the sweetest soul.  He is the greatest gift and I am so blessed to be his glamma!  Thank you to my son, Kori, and to Emily for making me a glamma.  It is a title I treasure!💕

You know pictures have to follow!

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That’s my oldest son, Kori, Emily and Jaxon.

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This is Jaxon with his cake face.

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Jaxon and his Glamma (me)!

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That’s T.J. my youngest son.

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Grandpa Javiee with Jaxon.

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This is my precious Jaxon! Could he be anymore beautiful!?!

 

 

 

 

 

On The Heels Of Pinktober….#iamsusan

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On the heels of Pinktober I ask all of my friends living with Metastatic Breast Cancer to support my friend, Kelli Parker (find her on Facebook), in her efforts to raise awareness to the fact that of the billions of dollars raised in the name of ” the cure” less than 7% of non-administrative funds went to metastatic research last year.  Susan G Komen died of Metastatic Breast Cancer. Her sister pledged to find “the cure”. You represent her efforts when you “run for the cure”. Yet only 7% went to metastatic research.  We ask Susan G. Komen to stand by their word. We deserve more.

Raise your voice and bring awareness to metastatic breast cancer.  Share your picture with #iamsusan. It’s time that the Susan G. Komen organization remember their slogan “For The Cure”.

I am Tammy Carmona and #iamsusan

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We Are All Susan.