Xeloda has not been good to me. My tumor markers are higher than they have ever been. They are sitting at 1613.9. It’s usually accurate with what’s going on in my body. 70 percent of my bones have been invaded by cancer. We still are not sure if it’s new cancer in my brain or brain necrosis. I will have new scans in another month to reevaluate exactly what it is. If it’s necrosis then we don’t want to go cutting on my brain. Wait and see. For now I’m taking Paclitaxel. I’m doing it once every three weeks. It can also be given once a week for every three weeks to lessen the side effects. My oncologist thinks once every three weeks is a better punch. That’s what I’m doing. It’s day two and I’m exhausted. I feel so weak. It’s actually hard to get out of bed right now. I’m just dealing with it and resting. It will be worth the down time if it works. Some pictures from my first day back in the chemo chair. I’ll go in one day soon for a port. My arm can’t handle this kind of treatment. I did it, but my arm was on fire afterward.
We used my arm beacause I don’t have a port. Port surgery is next.
It was an hour and a half treatment. I slept.
My, Javiee, my rock, hanging out with me in the chemo room.
I love you Guys! 💕 Plan something fun for the weekend! Make some memories and send me a picture! 💕💕 I’ll do a friends adventure post. We may have cancer, but we’re still loving life!
My latest scans showed progression to my ribs, spine and pelvis while I was on Ibrance. I have multiple new pelvic and femoral lesions. My spine has many new lesions (T5, T7, T8 and T12). The good news is there was no new growth in my organs and the tumor in my lung is 2 cm smaller. My tumor markers are also still dropping. I’m at 132 now!😀
I have a lot of pain in my hip. My oncologist was concerned and thought I may need a pin in my hip. He referred me to an orthopaedic oncologist, Dr.Gajewski, I loved him! He’s a great addition to my team. After x-rays and an exam he said no pin! The pain is muscle and nerve pain from my spine. I aggravate it by driving a five speed. I guess it’s time to get another car. He also said yoga will help. Time to start a yoga class!
As of February 8th I have lived with metastatic breast cancer for 4 years. Though I’m sure I had it years before I was diagnosed. I find it sad that I was told I didn’t need a mammogram until I was 40. I can’t help thinking at 35 I would have caught it before it spread. It is what it is. I’m thankful for the past four years. Even during treatment, my days have been filled with memories. I’ve had more time with my family. I’ve watched T.J. grow into a young man. So many special people have come into my life the past four years. I am so grateful. Let’s not forget….I became a glamma! I’m so in love with little Jaxon. He is perfect. In May I will be a glamma again! To a precious little girl. I hope she looks just like me!!😂
Living with metastatic breast cancer isn’t easy, but I’m living! That’s all that really matters. Get out and make some memories! I love you all!💕💕
Look at my new wig my sweet Javiee bought me. I love it! My hair is beginning to come back on the sides. The top is still bald. I call it a nohawk.
Today’s Wednesday. I love Wednesday, it’s my favorite day of the week. My Javiee is off on Wednesday, so it’s always a special day for us. We go out to breakfast on Wednesday, then we go shopping and get what we need for the week ahead. I know it sounds pretty simple, but it’s our time and we enjoy every second of it. Today’s a little different. Breakfast and then a mammogram (I found a lump in my left breast). I’m thankful my Javiee is with me for my appointment. I wasn’t really worried, I thought it would be nothing. The lady doing my mammogram was so nice, but when she saw the image and said wait right here a minute while the doctor looks at this, he may want to do an ultrasound , I knew there was a problem. Ten minutes later another lady is doing an ultrasound on my breast. She says give me a minute, let me get the doctor, he will want to look at this. I immediately broke down and started crying. In walks the doctor. He looked at the image on the screen and said we need to do a biopsy. Still crying, I asked him for the truth, is it cancer? He said yes. I was then told to get dressed and wait in the female only waiting room for the nurse who would give me my appointment for the biopsy. I got dressed and made it to the waiting room. Then it hit me. I was crying uncontrollably. I didn’t even realize how loud my crys were until I saw my Javiee run around the corner. I told him the news and we hugged and we cried. Then he says maybe it’s not cancer. I couldn’t let him have false hopes because I knew it from the first “wait right here while the doctor looks at this”. These nurses knew what they were looking at, that’s why they got the doctor to look. It was cancer! We walked out with an appointment for a biopsy and an unconfirmed diagnoses of cancer. It was devastating! We stood in the parking lot hugging and crying. How could this be happening to us???