I don’t like to do scans in December. I love the happiness that fills the air this time of year. Bad scans could dampen that. I’m so excited to tell you that 15 rounds of WBR and a CyberKnife session gave me a good brain MRI!! Can we all do a happy dance!?!?!
This doesn’t mean I’m dancing with NED again. I was on Ibrance and Falsodex for the mets to my lung, hip and spine. It did nothing to keep those areas stable. I was on it for four months and my tumor marker went up monthly. My last scan showed progression in all those areas. My oncologist changed my medication to Afinitor and Exemestane two months ago. I have a new PET scan in January to see if it’s working. I’m praying it is. The side effects are easier to deal with than the ones I had on Ibrance. I’m dealing with mouth sores and little bumps that randomly appear in different places. My pain medicine is keeping my spine and hip pain under control and I’m no longer completely exhausted. I’m actually feeling pretty good right now! I feel so blessed to be here for another holiday season. I think my New Years resolution will be to make everyday a holiday!
Merry Christmas and Happy Holidays! Life is busy, slow down and spend quality time with your loved ones. Keep your family traditions alive and make memories (they last forever!).
Thank you for all the prayers and love you’ve showered me with over the past 4 (almost!) years. It means so much to me! 💕💕💕
Now I have to share family news! Remember how I wanted to live to be a glamma? Well, now I will be glamma again! Kori and Emily are expecting in May. Jax will soon have a little brother or sister. I’m so excited! I love being a glamma! He will be 2 when his new brother or sister arrives. Look at how big he is!
One day after completing 15 rounds of whole brain radiation I went in for my Oophorectomy. It was an out patient surgery. My surgeon told me the recovery would be easy. I shouldn’t be in pain and I should feel ok the next day. Just take it easy and no heavy lifting.
Here’s what he didn’t tell me. Don’t lay down after surgery.
I went home and went to bed. I woke up the next morning in horrible pain. Not abdominal pain, it was shoulder pain. The gas that had been used to expand my abdomen during surgery had set up in my shoulder. I should have slept sitting up in a recliner and I would have felt fine the day after surgery. I wasn’t told that and I took pain meds and cried with shoulder pain for about five days. It was bad! If this surgery is in your future remember that and you should have a fast recovery. I have four tiny scars from the incisions and they healed within two weeks.
Now for what was hiding in each of my ovaries:
That’s a picture of a tumor that was in my ovary. There was one in each ovary. This is the largest one (2.0 cm). How did a tumor this size not show on my scans? The good news here is that we had it tested and it’s still er/pr+. That gives me hope that the new medication I’m on can work on my bones and lung.
I go in for new scans next month to see if Faslodex and Ibrance are working. I’m a little concerned because my tumor marker keeps getting higher every month. Then in October I will have a new MRI to see what all the brain radiation has accomplished. Until then I’m staying positive and living every good day to the fullest. I’m also sleeping a lot. I don’t know if it’s still exhaustion from radiation or my new treatment plan but there are days when I just don’t want to get out of bed.
I want to send a big thank you to everyone that has messaged, called and came by to share their love. I even received care packages from Australia (I ♥️You Emma!) and from Arizona (I ❤️ You Sally!) You all make my world brighter!
Get out and make some memories! 💕💕
What a week! I’m exhausted, mentally and physically. I had an IV steroid treatment last week to reduce the swelling in my head. I was then put on an oral steroid that I am taking two times a day. I’m not a fan of steroids. I hate not feeling like myself. They make me irritable and nauseous. They make my blood glucose out of control. They have relieved my headache, but I have decided I’d rather deal with a headache. I quit taking the steroids yesterday. Today I slept until 1 p.m. and I’m feeling a little better.
I saw my radiology oncologist, Dr. Smather’s, last week. I really love her! We went over the results of my Brain MRI. She is confident that this is something we caught early and can control. There are tiny spots all over the cerebellum (the back of my brain). It’s almost as if someone has taken a Clorox bottle and sprayed it on my brain from behind. Because these spots are scattered our course of treatment will be WBR (whole brain radiation). I have always known I didn’t want to do WBR. However, this is the plan. This is what I will do. My youngest son is 13. I cannot discount any treatment. I will do whatever I have to for the chance to see him graduate high school. So, here’s the plan…
15 days of WBR starting this Thursday. The following Friday I will leave radiation and then go over to the hospital to have my ovaries removed. While all this is happening I will also be adjusting to the new chemo I will be starting this week. When WBR is completed we will do a new MRI and decide if we can do targeted radiation to the tumor behind my eye or if we will gamma knife it. Geez! I believe this is going to be a hard month!! (understatement of the year!)
My doctors are confident, as am I. I have so much left to do and so many more memories to make! I am hopeful that this is just a temporary setback.
Thank you all for your love and support. I will do my best to keep you updated.💕💕
Here’s a picture of my Javiee and I on our latest road trip. I’m focusing on a family cruise when this mess is over! Take time to make memories!💕
The past two years have been fantastic. Zoladex and Femara have served me well, until now. I ended up in the emergency room on our beach trip with a massive headache. I was treated for a migraine. My headache never went away. I had blood work done at the cancer center when we returned home. My tumor marker was on the rise. Scans showed a tumor in my ovary, two on my hip, on my ribs and on my spine. A brain MRI showed it had also metastasized to my brain.
There are no words that can begin to express how devasting this news is to us! What a change in only three months! We have cried, screamed and cried some more. There is nothing left to do but fight this. My big girl panties are back on. (Thanks to words of wisdom from a dear friend, Anya)
So, what’s next? Tomorrow I will see a radiation oncologist. I will find out exactly what the brain scans show and get ready for radiation. I will be starting a new chemo (Ibrance and Faslodex) next week. Three weeks on and one week off. I will be getting xgeva monthly for my bones. I will also be having surgery to remove my ovaries. Wow! This is not what I had planned for this summer! I will keep you updated. I’m grateful to have all your support! You all make my life brighter!💕💕💕
I have so much to share about our Little Pink Houses Of Hope trip. Life has been crazy! I will share pictures from our trip soon!