brain surgery

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Back In The Chemo Chair….An Update

Xeloda has not been good to me.  My tumor markers are higher than they have ever been.  They are sitting at 1613.9.  It’s usually accurate with what’s going on in my body.  70 percent of my bones have been invaded by cancer.  We still are not sure if it’s new cancer in my brain or brain necrosis.  I will have new scans in another month to reevaluate exactly what it is.  If it’s necrosis then we don’t want to go cutting on my brain.  Wait and see.   For now I’m taking Paclitaxel.  I’m doing it once every three weeks.  It can also be given once a week for every three weeks to lessen the side effects.  My oncologist thinks once every three weeks is a better punch.  That’s what I’m doing.  It’s day two and I’m exhausted.  I feel so weak.  It’s actually hard to get out of bed right now.  I’m just dealing with it and resting.  It will be worth the down time if it works.  Some pictures from my first day back in the chemo chair. I’ll go in one day soon for a port.  My arm can’t handle this kind of treatment.  I did it, but my arm was on fire afterward.

We used my arm beacause I don’t have a port. Port surgery is next.
It was an hour and a half treatment. I slept.
My, Javiee, my rock, hanging out with me in the chemo room.

I love you Guys! 💕  Plan something fun for the weekend!  Make some memories and    send me a picture! 💕💕  I’ll do a friends adventure post.  We may have cancer, but we’re still loving life!

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Rising Tumor Markers

I have lived with metastatic breast cancer for five years. Throughout this time my CA 27.2 marker has been an accurate indication of what’s going on inside my body. It’s steadily been on the rise. This month it jumped another 170 units. My hope is that cancer is dying and not growing while I’m on Xeloda. I have a new brain MRI and a chest and abdomen CT scheduled in two weeks. If the tumor in my brain is bigger my only option seems to be surgery. I’ve decided to have the surgery if necessary. But first, I’m going to the beach for a week and I’m going to see Lynyrd Skynyrd the first weekend in September! I’m going to enjoy summer, make some memories and not stress the outcome of my scans. If I have to deal with it I’ll do it in mid September.

Here are my recent tumor markers. They seem to be rising since I started Xeloda.

CA 27.2

1311.8 units/mL
Date:
Jun 11, 2018

1141.6 units/mL
Date:
May 11, 2018

1084.6 units/mL
Date:
Mar 16, 201

1037.9 units/mL
Date:
Feb 16, 2018

1057.4 units/mL
Date:
Jan 26, 2018

968.0 units/mL
Date:
Jan 04, 2018 n

263.3 units/mL
Date:
Nov 24, 2017

268.7 units/mL
Date:
Oct 26, 2017

216.2 units/mL
Date:
Aug 11, 2017

232.8 units/mL
Date:
Jul 27, 2017

199.3 units/mL
Date:
Jun 28, 2017

160.1 units/mL
Date:
Jun 01, 2017

Despite all this cancer chaos, I’m still alive, so I’m still smiling. My Javiee and I celebrated another anniversary on June 5th. Here’s a picture….We went to The Conundrum escape room in Asheville. If you haven’t been to an escape room, you should definitely go! We didn’t escape but we had a blast! Here’s our picture…..My precious granddaughter, Evie, had her first birthday! You know a picture is coming!

Thank you all for your love and prayers! I’m sending love to each and everyone of you! It’s summer! Get out and make some memories!💕💕

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Brain MRI Update

I was concerned about this MRI because it was to determine if I would be having brain surgery in May.  One 3mm lesion is gone.  Others have decreased in size.  The one that was most concerning has grown a little.  My board of doctors met and decided we should do scans again in two months to see if it changes.  The hope is that it’s brain necrosis and not a tumor.  I have an appointment with a neurosurgeon next week.  I think it’s good to be prepared for anything.  I feel better knowing I have a plan if something doesn’t go my way.

I’m happy with these results. I’m excited that summer is on the horizon! Time to make some memories!

I have to share a few memories from the past month!

My precious grandson turned 3!  I’m so blessed to be here to  get to know him!

He saw Spider-Man at the circus and asked him to come to his birthday party. 😍. Spider-Man came and was awesome ( Thanks Chris)!!!!

I kept Little Miss Evie for the first time.  This is a big deal, she’s a Mama’s girl!

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Jax and I usually paint rocks.  Last week we made our own teepee.  He loved it.

Next week Miss Evie will have her first birthday party.  Here’s to more memories, get out and make some!💕💕

All my love to you guys!  Thank you for the love and prayers! 💕

 

 

 

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New Brain MRI Results

I love my radiation oncologist, Dr. Smathers.   When it comes to living with cancer  the most important things to me are quality of life and honesty.  I don’t want anything sugar coated!  She understands and that’s what she gives me.  I love to see her walk in with a smile.  I didn’t get that last month.  I got it today!  My scans showed nothing new.  It showed the little brain mets were no longer there.  The belief is that Xeloda took care of them.  The tumor in my left frontal lobe has grown 2mm.  Her hope is that Xeloda will reach that tumor and shrink it.  We have a new brain MRI scheduled in two months unless I start having symptoms.  The most common symptoms  would be dizziness, headaches and nausea. That’s the plan as long as I feel good.   If nothing changes on the next scan we will consider adding Methotrexate.   If it continues to grow brain surgery is my other option.   It’s another wait and see.

I give God the glory.  Five tumors gone in a month is amazing.  Thank you all for your love and prayers!  They mean so much to me!💕💕

I’m grateful for another month and for more memories!

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We taught Jax how to play Candy Land.  He won his first game!  I love being a glamma!

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I had another Valentines Day with my sweet Javiee.  This man is my rock!❤️

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T.J. joined ROTC (Air Force).

This has been a month full of memories!  Some deserving a title of their own.  I’ll add them soon!

Until then……Get out and make some memories!💕💕

 

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Brain MRI Results

I’m going to keep this simple for you guys.  I have a new tumor in my brain.  It’s in the superior left cerebellar hemisphere. WBR and the cyber knife took the initial tumor away back in 2016.  This tumor is growing right underneath where the initial tumor was located.  Radiation is not an option for this tumor.  My doctors are getting together Friday with other specialists and going over my charts to figure out what my options may be.   Here’s some good news……

Two rounds of Xeloda cleared my liver!  Those liver mets are gone.  It’s been four months since my previous brain MRI.  Our hope is that this tumor in my brain was bigger and xeloda has shrunk it.  There’s no way to know because my previous brain MRI was clear. Our plan, for now, is to keep taking Xeloda and do a new brain MRI next month.  If the tumor is smaller then we will continue with Xeloda and monthly scans.  If the tumor is the same size or bigger next month the only option will be brain surgery.  That’s the plan right now.  This could change after our meeting Friday.  Another wait and see!

I have chosen to not worry about this.  I’m going to keep doing what I’m doing and see what next month brings.  What does worrying help anyway?  Tomorrow I’m going to pick up my sweet little Jaxon and we are going to watch T.J. wrestle.

I love you guys! Get out and make some memories! 💕💕💕

My song for the day….Click here. 😂