Tumor Markers

There are a lot of different opinions when it comes to tumor markers.  My first oncologist tracked my markers and believed that they gave her an idea of how my treatments were working.  My new oncologist doesn’t worry about them as much.  I feel like I’m one of the lucky ones that can follow tumor markers.  When taxol failed my tumor makers rose.  We changed treatment and they dropped.  The same goes with Femara.  I went to Ibrance and my tumor markers climbed to 694 (CA 15-3) and 410 (CA 27-29).  My markers have never been so high!  We changed my treatment to Afinitor and they dropped.  I’m at 189 now.   That’s still not a good number.  I want to see it under 30 again.  For now I’m grateful to see such a big drop!

I’m scheduled for a new bone and pet scan the first week in February.  I have a lot of pain in my lower spine and my neck.  I know there was progression when I was on Ibrance.  The question is how much.  Back to waiting!

Until then I’ll keep taking my pain meds and enjoy some time with my Javiee (he’s off for a few weeks!). T.J. is keeping me busy with wrestling matches.  I walk into a match with no energy and leave as the cheering mom.  He’s doing really well.  I won’t miss a match even if I have to drive an hour to get there.  I’m just so thankful to be here to see him participate.  There’s no way I would miss one!

Ok, one more story to share!  My favorite Christmas song is The Christmas Shoes.  I play it every Christmas.  This year for Christmas Kori gave me Christmas shoes and had the song playing when I opened them.  I cried and cried.  It was a special Christmas full of special gifts but this one made my heart smile.  I know this song will always make Kori think of me.  Memories, the only thing that will outlive us!  Get out and make some!  I love you guys!!💕💕

 

I have to include a picture from Christmas!

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New Brain MRI Results

I don’t like to do scans in December. I love the happiness that fills the air this time of year.  Bad scans could dampen that.  I’m so excited to tell you that 15 rounds of WBR and a CyberKnife session gave me a good brain MRI!!  Can we all do a happy dance!?!?!

This doesn’t mean I’m dancing with NED again.  I was on Ibrance and Falsodex for the mets to my lung, hip and spine.  It did nothing to keep those areas stable.  I was on it for four months and my tumor marker went up monthly.  My last scan showed progression in all those areas.  My oncologist changed my medication to Afinitor and Exemestane two months ago.  I have a new PET scan in January to see if it’s working.  I’m praying it is. The side effects are easier to deal with than the ones I had on Ibrance.  I’m dealing with mouth sores and little bumps that randomly appear in different places.  My pain medicine is keeping my spine and hip pain under control and I’m no longer completely exhausted. I’m actually feeling pretty good right now!  I feel so blessed to be here for another holiday season.  I think my New Years resolution will be to make everyday a holiday!

Merry Christmas and Happy Holidays!  Life is busy, slow down and spend quality time with your loved ones.  Keep your family traditions alive and make memories (they last forever!).

Thank you for all the prayers and love you’ve showered me with over the past 4  (almost!) years.  It means so much to me! 💕💕💕

Now I have to share family news!  Remember how I wanted to live to be a glamma?  Well, now I will be glamma again!  Kori and Emily are expecting in May.  Jax will soon have a little brother or sister.  I’m so excited!  I love being a glamma!  He will be 2 when his new brother or sister arrives.  Look at how big he is!image