Rest and Recovery

I have to update you all because I was in really bad shape in my last post. That was the closest to death I’ve ever been. The chemo therapy elevated my calcium levels so much that it almost killed me.

I came from the hospital and had a home care nurse visit twice a week and a physical therapist visit weekly. My vitals slowly became better and my strength started coming back. I can walk again! I’m not back to where I was. I can walk around inside my house. I can get out of the car and make it inside the grocery store to the wheelchair. Oh, the joy of going to the grocery store again for the first time! I can’t drive and still have to take a lot of breaks. I can’t do steps, but I do see progress!

I made it outside on Halloween and sat around a bonfire with my family! Memories💕. I will include pictures.

I see my oncologist again on the 28th of this month. Until then my plan is to rest and try to recover more.

Thank you all for the love and prayers. They mean so much to me!

Enjoy the holiday season and make lots of wonderful memories!💕

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Beyond Time for An Update.

Beyond Time for An Update.

I have been home a few days now. I’ve spent the last 10 days or so in the hospital. Unknowingly, In the hospital. I honestly thought I had been kidnapped. I know it sounds crazy but it’s not. My Mom and my husband were trying to get me up from my bed at my house. I would vomit every time they tried. I couldn’t speak to them. I couldn’t walk. I was completely unaware. They called an ambulance, if they hadn’t, I wouldn’t be here today. It seems to be the chemo therapy I was on caused Cancer-Related-Hypercalcemia. My calcium levels were so high, I was literally out of my mind. I’ll follow up on this later. Right now I’m just trying to give you an idea of what’s going on.

Though my brain looks better, I’m actually doing worse than I’ve ever been. I now have leptomeningeal metastases which have spread to my meninges and spinal fluid. It can’t get much worse for me. I have two more days of radiation. I don’t know what’s after that. So far I’ve heard there is nothing else to do.

Right now my plan is to rest and get through my last two radiation appointment’s. My doctor has said I can have no visitors until she sees me next week. The least little germ could kill me right now.

I’d love to see you guys, I just can’t. I saw my kiddos the other day, so I have a few pictures. For now that’s really all I know. I have to give this to God right now. I’m serious when I say I can’t even walk alone. My mama and my Javiee have been doing everything for me. Stop and think about that. It’s so hard, but I’m so blessed to have them here right now. I will update you all as soon as I know more. I love you all! Thank you for the love and prayers. Get out and make some memories!💕💕

New Scans

Copy of RADRPT 07-13-2018-RADRPT 07-13-2018-1

There are two scans there, just click the links.

New scans and another wait and see.  Friday there will be a meeting on my body scans.  Do we add to Xeloda or make a total change?  That is the question.  Tomorrow I will see my radiology oncologist and will either start or make a plan to start radiation on my right arm/shoulder.  I have been in so much pain the past few days.  Even my pain meds don’t help.  I got a stronger pain medication today.  I don’t like it, it makes me nauseous, but it takes the pain away.  That’s where I’m at until tomorrow.  I’ll let you all know when I have a definite plan.

 

Sending love to you all!  Get out and make some memories!💕

Brain MRI Results

TAMMY CARMONA

FINDINGS

BRAIN AND EXTRA-AXIAL SPACES: In the interval, there is significant enlargement in the multifocal areas of enhancement in the medial right temporal lobe since the previous exam of 04/23/2018. There is a dramatic increase when compared back to 01/22/2018. The inferior component of enhancement is without significant change measuring 1.3 x 1.8 cm (transverse by AP), as seen previously. However the superior component measures 1.6 x 2 cm and previously this measured 0.9 x 1.5 cm. In addition there is a more anterior component of enhancement that measures 1.3 x 1.1 cm that previously measured 0.8 x 0.4 cm. Thus, there is significant increasing enhancement in the medial temporal lobe. Surrounding edema in the right temporal lobe extends back little more posteriorly than previously. Perfusion images however do not show significant increased perfusion. Perfusion images suggest that these changes are related to radiation necrosis. However given the significant progression, I am concerned this is progressive neoplasm at this site..

The 2 mm focus of enhancement laterally in the right cerebellum on image 23 of series 10 is unchanged. The small focus of hemorrhage superiorly in the left superior cerebellum is unchanged.

No new areas of enhancement are visualized.

VENTRICLES: Normal in size and configuration.

SELLA/PARASELLAR REGIONS: Partially empty sella is again visualized.

VESSELS: Normal flow related enhancement in the major vessels of the circle of Willis and the major dural venous sinuses.

CALVARIUM AND SKULL BASE: No calvarial abnormalities are identified. PARANASAL SINUSES/MASTOID AIR CELLS: The paranasal sinuses, middle ear cavities and mastoid air cells are well-aerated.

ORBITS: Within normal limits

CRANIOCERVICAL JUNCTION: Within normal limits

OTHER FINDINGS: No other significant findings are seen.

IMPRESSION:

1. Interval significant increase in enhancing multifocal areas in the medial right temporal lobe since the previous exams of 4/23/2018 and 1/22/2018. Although this could still be radiation necrosis, recurrent neoplasm is an increasing concern.. MR cannot definitely differentiate these.

2. Unchanged tiny punctate focus of enhancement in the right cerebellum and small focus of hemorrhage in the left cerebellum.

3. No new areas of abnormality.

I love my radiology oncologist. She’s always honest with me. She’s says this is not good. We are not sure if it’s cancer or necrosis from radiation. There will be a meeting on my case on Monday. Then we will have a new plan. Right now the plan is to add another drug to my Xeloda and rescan in 2 months. If the progression is still as fast as it has been the past two months then brain surgery is my option. This plan may change after the board meeting. They will also consider some clinical trials. It seems to be another wait and see.

For now, I’m going to enjoy summer! I’m still going to the beach for a week and then the 🍒 on top is Lynard Skynard in September!😂. This has already been an eventful summer! I tell myself daily that I am blessed to be here and still be making memories! I have watched as T.J. got his first job, his first checking/ savings account, and finished drivers ed! He will be driving me around next week! I told him one day he will wish he didn’t have to work. I said don’t you want to hang by the pool, kayak and do things like that this summer? He said “Mom, I’m building my resumé”. 😂. How do you say no to that? I’ve also had so much quality time with my precious grand babies! You know I’m including pictures!

Thank you all for your love and support. You all bring sunshine to my life! I may make cancer look easy, but it’s not. When you see my adventures on Instagram or Facebook, know that I’m in bed on pain meds the next day. It’s so worth the memories I’m making! Life is so good! Get out and enjoy it and make some memories!!!!!Sending love to each and everyone of you!💕💕💕💕

Rising Tumor Markers

I have lived with metastatic breast cancer for five years. Throughout this time my CA 27.2 marker has been an accurate indication of what’s going on inside my body. It’s steadily been on the rise. This month it jumped another 170 units. My hope is that cancer is dying and not growing while I’m on Xeloda. I have a new brain MRI and a chest and abdomen CT scheduled in two weeks. If the tumor in my brain is bigger my only option seems to be surgery. I’ve decided to have the surgery if necessary. But first, I’m going to the beach for a week and I’m going to see Lynyrd Skynyrd the first weekend in September! I’m going to enjoy summer, make some memories and not stress the outcome of my scans. If I have to deal with it I’ll do it in mid September.

Here are my recent tumor markers. They seem to be rising since I started Xeloda.

CA 27.2

1311.8 units/mL
Date:
Jun 11, 2018

1141.6 units/mL
Date:
May 11, 2018

1084.6 units/mL
Date:
Mar 16, 201

1037.9 units/mL
Date:
Feb 16, 2018

1057.4 units/mL
Date:
Jan 26, 2018

968.0 units/mL
Date:
Jan 04, 2018 n

263.3 units/mL
Date:
Nov 24, 2017

268.7 units/mL
Date:
Oct 26, 2017

216.2 units/mL
Date:
Aug 11, 2017

232.8 units/mL
Date:
Jul 27, 2017

199.3 units/mL
Date:
Jun 28, 2017

160.1 units/mL
Date:
Jun 01, 2017

Despite all this cancer chaos, I’m still alive, so I’m still smiling. My Javiee and I celebrated another anniversary on June 5th. Here’s a picture….We went to The Conundrum escape room in Asheville. If you haven’t been to an escape room, you should definitely go! We didn’t escape but we had a blast! Here’s our picture…..My precious granddaughter, Evie, had her first birthday! You know a picture is coming!

Thank you all for your love and prayers! I’m sending love to each and everyone of you! It’s summer! Get out and make some memories!💕💕

Wednesday…Mammogram Day..Feb 6, 2013

Tuesday, February 6, 2018 I hit my five year mark. Five years living with metastatic breast cancer. Being diagnosed at Stage 4 means I’d unknowingly been living with cancer for a while. This was just the day I first heard “you have cancer”. I’ve been blessed the last five years with so many memories. Tonight, in reflection, I’m going back to my first ever blog post. I actually started the blog for my sister who lives in North Dakota. It grew into so much more. You all have become a huge part of my life and I’m grateful. 💕💕💕

Tammy Carmona

Today’s Wednesday. I love Wednesday, it’s my favorite day of the week. My Javiee is off on Wednesday, so it’s always a special day for us. We go out to breakfast on Wednesday, then we go shopping and get what we need for the week ahead. I know it sounds pretty simple, but it’s our time and we enjoy every second of it. Today’s a little different. Breakfast and then a mammogram (I found a lump in my left breast). I’m thankful my Javiee is with me for my appointment. I wasn’t really worried, I thought it would be nothing. The lady doing my mammogram was so nice, but when she saw the image and said wait right here a minute while the doctor looks at this, he may want to do an ultrasound , I knew there was a problem. Ten minutes later another lady is doing an ultrasound…

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Time to say goodbye to Afinitor–A Scan Update

Some treatments are easier to handle than others.  Afinitor was fairly easy on me. I had many adventures and made lots of memories this summer while on Afinitor.  I wish it would have worked longer.

My new scans showed two tumors in my liver.  I had cancer in my ovaries and I had them taken out.  I can’t just take my liver out.

Time for a new plan.  Xeloda is what’s next for me.   I’m not ready for new side effects and fatigue.  It is what it is.  I will adjust and carry on.  I have so much love in my life, so much to live for.  That keeps me going.

I love you guys!  I’ll keep you updated! 💕

 

 

 

Scan Results

There are a few impressive words on my scans this month.  My favorite is STABLE!  It says I have widespread bony metastases that show NO PROGRESSION since 02/06/17.  I’ll take it!

So where are my mets?

In my T3, T5, T6, T7, T11 and T12 vertebra.  There are multiple mets in my lumbar spine.  L3 is the worst and it hasn’t grown in the past three months.  There are multiple mets in my sacrum, iliac, pubic rami and my right femur.

Are they painful?

Yes.  Some more than others.  There is one on my spine that causes shooting pain if I move a particular way.  It’s close to a nerve.  I take hydrocodone and get on with life.

I also had brain mets and I have a brain MRI scheduled the first of June.  My last brain scan was clear.  I’m praying for the same result!

Remember the tumor in my lung?  Well, there is stable scarring in the left upper lobe.  No evidence of lung metastasis! Wow!

The pea sized knot in my neck seems to be my immune systems way of dealing with allergies. Good News! Gotta love it!

It’s always good to hear stable and nothing new!   What’s a girl to do?  I’m off to Mexico soon with my Javiee.  He’s working two jobs to pay for our trip (imagine not seeing your family for 11 years!).  Our tickets have been purchased and we’re going no matter what my brain MRI shows.  Time to make some memories!!    I love you guys!💕💕💕

 

New Scan Results

My latest scans showed progression to my ribs, spine and pelvis while I was on Ibrance.  I have multiple new pelvic and femoral lesions.  My spine has many new lesions (T5, T7, T8 and T12).  The good news is there was no new growth in my organs and the tumor in my lung is 2 cm smaller. My tumor markers are also still dropping.  I’m at 132 now!😀

I have a lot of pain in my hip.  My oncologist was concerned and thought I may need a pin in my hip. He referred me to an  orthopaedic oncologist, Dr.Gajewski, I loved him!  He’s a great addition to my team.  After x-rays and an exam he said no pin!  The pain is muscle and nerve pain from my spine.  I aggravate it by driving a five speed.  I guess it’s time to get another car.  He also said yoga will help.  Time to start a yoga class!

As of February 8th I have lived with metastatic breast cancer for 4 years.  Though I’m sure I had it years before I was diagnosed.  I find it sad that I was told I didn’t need a mammogram until I was 40.  I can’t help thinking at 35 I would have caught it before it spread.  It is what it is.  I’m thankful for the past four years.  Even during treatment, my days have been filled with memories.  I’ve had more time with my family.  I’ve watched T.J. grow into a young man.  So many special people have come into my life the past four years.  I am so grateful.  Let’s not forget….I became a glamma!  I’m so in love with little Jaxon.  He is perfect.  In May I will be a glamma again!  To a precious little girl.  I hope she looks just like me!!😂

Living with metastatic breast cancer isn’t easy, but I’m living!  That’s all that really matters. Get out and make some memories!  I love you all!💕💕

 

Look at my new wig my sweet Javiee bought me.  I love it!  My hair is beginning to come back on the sides.  The top is still bald.  I call it a nohawk.

image

My CyberKnife Experience

Just hearing cyberknife and knowing it was for a tumor behind my eye was beyond anything I could imagine.  Then I was told it would take 3-4 hours and I would be awake the entire time.  This was not an appointment I was looking forward to!

I have to tell you it sounds worse than it is.  It actually doesn’t even involve a knife.  It’s a robotic radiosurgery system that delivers beams of high dose radiation to tumors with extreme accuracy.  No cutting and no pain involved.  I was fitted for a mask the week before surgery.  For me, this was the only uncomfortable thing about the surgery.  The mask is screwed into the table and it’s tight.  Here’s a picture of my mask.  I see a Halloween costume in T.J.’s future, it’s scary!

image

They gave me an Ativan before the surgery.  I was worried about being awake during this.  If they had said we give you ativan before we start I would have had no worries.  I remember my mask being attached and getting up.  That’s it.  I won’t have a new brain MRI until the end of October.  I’ll update you when I get results.  Waiting is always the hardest.  I just try not to think about it and go on with life.

This is a picture of the Cyberknife System.  The robotic arm moves to hit targeted areas.

cyber-knife

Now for the aftermath.  I vomited for 2 weeks and lost 15 lbs.  I couldn’t eat.  Everything I tried to eat tasted so salty and I would get sick to my stomach instantly.  The medical term for this is Dysgeusia.  I ate chicken nuggets for two weeks.  Now I’m eating fish, rice, cantaloupe, chicken nuggets, cheese on unsalted crackers and cheesecake.  My Javiee is still making me juices and I’m keeping them down.  I do miss his cooking!  Chocolate and red meat are the worst right now.  I never thought I’d see the day that I turn down chocolate!  I still have days when I’m just completely exhausted.  On those days I celebrate going to the grocery store! On the bright side I’m having more good days than bad now!  That’s really something to celebrate!

 

I have to end with a picture of T.J. holding my grandson Jax.  I think this is the first time he held him since the day he was born.  He was completely uninterested in holding him during the slobber and spit up days.  I honestly didn’t think he’d hold him until he was out of diapers.  I was so proud of him!

cyberknife3

Get out and make some memories!