Hello April!

I’m happy to say hello to a new month!  March was probably the craziest, busiest, most stressful and most rewarding month I’ve ever had!

I flew to Vegas and filmed a television show (and signed a confidentuality agreement). So there are no details about the show that I can share with you. Sorry!  I would love to because I think it’s going to be amazing! You guys will just have to wait.  It was a fantastatic experience and I met the most wonderful people while doing this project.  My Javiee bought me a new wig for the filming and there was a professional makeup artist there so I felt beautiful…..here’s a picture!

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I have to include a picture with my Vegas partner in crime, Marilyn.  Ok, so no real crimes were committed, but we had a fabulous time together!  Thank you Marilyn for taking this journey with me!

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Two days before I left for Vegas my husband was on a plane to Mexico.  This was the stressful part of my month.  I share my family and my life with cancer with you all.  There are somethings that I haven’t shared with many people.  One of these things is that my sweet Javiee was illegal.  I mean walked across the desert for 6 days illegal.  He told me before we even started dating.  Honestly, I didn’t care.  I knew it wouldn’t be easy.  I also knew it would be worth it.  It’s been eleven years and I wouldn’t trade a minute of our time together for the biggest house or the fanciest car on the block. He has loved me during the good times and held me up during the bad.  He has worked so hard to help T.J. become the confident young man that he is now.  He is a grandpa to Jax and will always be there for Kori and Kristen.  We are all blessed to have him in our lives.

Sending him to Mexico for his immigration appointment was so stressful.  If denied he was facing a ten year bar from returning. Talk about nerve wracking!  He was approved and is home now ( the process took four years). He’s legal, has a social security number and a drivers license.  Talk about life changing.  Freedom (don’t take yours for granted)!  I have watched my Javiee be taken advantage of SO many times because he was illegal.  That won’t happen anymore.  Now is his time to get what he deserves and I’m so happy for him! And us!

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Here’s the sad part.  If I wasn’t diagnosed with cancer he would have never been approved.  He was approved because of a hardship waiver.  I know most people think you can apply and go through a process and become legal if your married to a citizen.  It doesn’t work that way if your here from Mexico illegally.  Now if your a citizen and want a Russian bride you can just go apply for a K-1 Visa and that’s that.  Ridiculous if you ask me.

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Here’s one of the first pictures that Javiee, T.J and I had taken together.  Javiee has always been there for us and I can’t imagine life without him.  We are so blessed to have him home!💕💕

The month ended with a baby shower, a week with our precious little Jaxon, a new car (new to us) and an all day wrestling tournament with T.J.

A few pictures from the baby shower.  Kori and Emily will be having a little girl soon!

imagePictures from our week with Jax.  He is the sweetest. I love spending time with him and I love hearing him say glamma!

imageHere’s a picture from the wrestling tournament.  It was T.J.’s first time wrestling Greco Roman and freestyle.  He came home happy with two third place medals.

I have to thank two beautiful souls before I end this post Linda and Windy.  Remember I told you my doctor wanted me to stop driving our 5 speed because it was aggravating the pain in my hip and spine.  We had planned on buying a new car when Javiee came back from Mexico and went back to work.  The immigration process took what money we had saved so we decided to wait until we could save money for a decent used car.  Having a car payment is not a good thing when you have cancer because you never know what medicines or treatments won’t be covered by your insurance the next month.  I lost the last new car we had because I had to pay for my first surgery and was out of work.  I thought it was better to just keep driving the 5 speed for a while.  Well, thanks to Linda and Windy I’m no longer driving that 5 speed.  They gave us a car this week.  How do you say thank you to such a kind gesture?  They are special ladies and we are so thankful to them.  We love you Linda and Windy!  I wish I had a picture of them to share!

What a month, right?  Six months ago I was doing WBR and a new chemo.  I was so sick.  It was the first time I had ever felt like it may be the end of my life here.  I remember a consult with my doctor about changing my meds.  My mom was there and she knew how sick I was.  She asked me if I really wanted to start a new medication and add more to what I was already dealing with.  I would do anything for more time/memories with my family.  I did start the new treatment regimen and I’m so glad I did.  One new medicine can change so much.  Look at the month I’ve had!  I would have missed this!  Donating to research is so important to those of us living with Metastatic Breast Cancer.  Please support Metavivor.  100% of your donation will go to research.

I Love you guys!  Thank you for sharing my life with me.  I know there will be the random person that comes across my blog with opinions about immigration and such.  It’s fine, your comments are welcome.  One thing that cancer has changed in me is that I don’t mind criticism.  I don’t need approval.  Think about your life.  Wouldn’t it be nice to be free, not to worry about what everyone else thinks.  Life is short do what makes you happy and make those memories!!!  Sending love to you all!

Tumor Markers

There are a lot of different opinions when it comes to tumor markers.  My first oncologist tracked my markers and believed that they gave her an idea of how my treatments were working.  My new oncologist doesn’t worry about them as much.  I feel like I’m one of the lucky ones that can follow tumor markers.  When taxol failed my tumor makers rose.  We changed treatment and they dropped.  The same goes with Femara.  I went to Ibrance and my tumor markers climbed to 694 (CA 15-3) and 410 (CA 27-29).  My markers have never been so high!  We changed my treatment to Afinitor and they dropped.  I’m at 189 now.   That’s still not a good number.  I want to see it under 30 again.  For now I’m grateful to see such a big drop!

I’m scheduled for a new bone and pet scan the first week in February.  I have a lot of pain in my lower spine and my neck.  I know there was progression when I was on Ibrance.  The question is how much.  Back to waiting!

Until then I’ll keep taking my pain meds and enjoy some time with my Javiee (he’s off for a few weeks!). T.J. is keeping me busy with wrestling matches.  I walk into a match with no energy and leave as the cheering mom.  He’s doing really well.  I won’t miss a match even if I have to drive an hour to get there.  I’m just so thankful to be here to see him participate.  There’s no way I would miss one!

Ok, one more story to share!  My favorite Christmas song is The Christmas Shoes.  I play it every Christmas.  This year for Christmas Kori gave me Christmas shoes and had the song playing when I opened them.  I cried and cried.  It was a special Christmas full of special gifts but this one made my heart smile.  I know this song will always make Kori think of me.  Memories, the only thing that will outlive us!  Get out and make some!  I love you guys!!💕💕

 

I have to include a picture from Christmas!

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New Brain MRI Results

I don’t like to do scans in December. I love the happiness that fills the air this time of year.  Bad scans could dampen that.  I’m so excited to tell you that 15 rounds of WBR and a CyberKnife session gave me a good brain MRI!!  Can we all do a happy dance!?!?!

This doesn’t mean I’m dancing with NED again.  I was on Ibrance and Falsodex for the mets to my lung, hip and spine.  It did nothing to keep those areas stable.  I was on it for four months and my tumor marker went up monthly.  My last scan showed progression in all those areas.  My oncologist changed my medication to Afinitor and Exemestane two months ago.  I have a new PET scan in January to see if it’s working.  I’m praying it is. The side effects are easier to deal with than the ones I had on Ibrance.  I’m dealing with mouth sores and little bumps that randomly appear in different places.  My pain medicine is keeping my spine and hip pain under control and I’m no longer completely exhausted. I’m actually feeling pretty good right now!  I feel so blessed to be here for another holiday season.  I think my New Years resolution will be to make everyday a holiday!

Merry Christmas and Happy Holidays!  Life is busy, slow down and spend quality time with your loved ones.  Keep your family traditions alive and make memories (they last forever!).

Thank you for all the prayers and love you’ve showered me with over the past 4  (almost!) years.  It means so much to me! 💕💕💕

Now I have to share family news!  Remember how I wanted to live to be a glamma?  Well, now I will be glamma again!  Kori and Emily are expecting in May.  Jax will soon have a little brother or sister.  I’m so excited!  I love being a glamma!  He will be 2 when his new brother or sister arrives.  Look at how big he is!image