I have survived 15 rounds of whole brain radiation. Initially the hardest part was driving to Asheville and back everyday for a treatment that lasts less than 10 minutes. I videoed a session for those of you that may one day have to go through this.
Whole Brain Radiation Here’s the link
It was a painless procedure. My mask was latched to the table, everyone left the room and the radiation took a few minutes. There was a smell that came with the radiation. It reminded me of Clorox. The first 13 rounds were fairly easy on me. I was dizzy afterwards and needed a nap. I was surprised because I was expecting worse. It hit me at round 14. My forehead and my ears burnt so bad. After round 15 I couldn’t hear and my ears smelt horrible. I was told to take Mussinex to relieve pressure behind my ears. I did that for a few days and didn’t notice a difference. I ended up putting peroxide in my ears for a few days and my hearing is back! I must tell you my oncologist advised against using peroxide. It worked for me. My eyesight also got bad with the last rounds of radiation. I couldn’t read anything! I’m using readers now and I feel them getting stronger everyday. It’s been two weeks since my last round of radiation and the fatigue is extreme. I’m so tired. I just keep reminding myself that it’s over! I have had a hard month!! The day after my last radiation appointment I had my ovaries removed. I’ll do a post on that soon. I’m scheduled for the gamma knife and a new MRI in August. Until then I’m going to get out and spend some time with my guys. I’ll end with some pictures.
This is my radiation mask.
This is one of the Mets to my scalp. Radiation healed all of them. Let’s hope it’s working as well on the inside!
This is a harsh one, but I share my truth with you guys. My forehead after 15 rounds of WBR.
Now for one that shows me on the mend! It’s a wig!