What a week! I’m exhausted, mentally and physically. I had an IV steroid treatment last week to reduce the swelling in my head. I was then put on an oral steroid that I am taking two times a day. I’m not a fan of steroids. I hate not feeling like myself. They make me irritable and nauseous. They make my blood glucose out of control. They have relieved my headache, but I have decided I’d rather deal with a headache. I quit taking the steroids yesterday. Today I slept until 1 p.m. and I’m feeling a little better.
I saw my radiology oncologist, Dr. Smather’s, last week. I really love her! We went over the results of my Brain MRI. She is confident that this is something we caught early and can control. There are tiny spots all over the cerebellum (the back of my brain). It’s almost as if someone has taken a Clorox bottle and sprayed it on my brain from behind. Because these spots are scattered our course of treatment will be WBR (whole brain radiation). I have always known I didn’t want to do WBR. However, this is the plan. This is what I will do. My youngest son is 13. I cannot discount any treatment. I will do whatever I have to for the chance to see him graduate high school. So, here’s the plan…
15 days of WBR starting this Thursday. The following Friday I will leave radiation and then go over to the hospital to have my ovaries removed. While all this is happening I will also be adjusting to the new chemo I will be starting this week. When WBR is completed we will do a new MRI and decide if we can do targeted radiation to the tumor behind my eye or if we will gamma knife it. Geez! I believe this is going to be a hard month!! (understatement of the year!)
My doctors are confident, as am I. I have so much left to do and so many more memories to make! I am hopeful that this is just a temporary setback.
Thank you all for your love and support. I will do my best to keep you updated.💕💕
Here’s a picture of my Javiee and I on our latest road trip. I’m focusing on a family cruise when this mess is over! Take time to make memories!💕
sending strength from Maine
Thank you! I’m finally coming back to life. That WBR was no joke!
Love the pic! This is but a temporary setback! You are too tough to succumb to this. Hugs to you both!
Thank you Tammy! We love you!
It’s a good thing that God knows how strong you are! Sounds like serious stuff ahead for you on your life path, but always remember He is right there with you. You will be in our prayers. Hopefully, I will get my results back on Friday from my biopsy. Will post when I find out. You hang in there and I’m truly sorry that you have to go through all this.
Thank you Linda! I hope you and Micheal are well. We love you guys!
Wow. Hope the WBR is treating you kindly. Steroids are the devil! xoxo
Kimmy. I am exhausted! I made it thru 15 round and surgery. I have the gamma knife in August. how are you and are you going to get to finish your trip?
Sadly trip is on long term hold. I’m just not comfortable until I’m stable…or think I’m stable.
Still on schedule to get gamma knife?
I survived the gamma knife and I’m waiting until October to see what’s next. I’m exhausted! Resting and enjoying every minute I can with my guys!
As a fellow Stage 4 breast cancer patient, I can sympathize with some of the things you are going though. I found that Avastin worked extremely well to stop the brain necrosis that occurs after radiation.
Thank you Jan! They put me on memantine to help with that. I hope it works. How are you feeling?
I just read through your blog and wanted to send over some support. I just finished WBR, I was diagnosed with mets in February. I found it in the brain as well 4 weeks ago. I had my scans to see almost all 9 of my lesions are shrinking quickly. I know it will be the same for you. I will be thinking of you! Xox
Thank you Sam! I will have a new MRI in August. How are you feeling now?